26 research outputs found
Young adults with type 1 diabetes and their experiences with diabetes followâup and participation in the DiaPROM pilot trial: A qualitative study
This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.Aim
To explore young adults' experiences of outpatient followâup appointments, completing electronic PatientâReported Outcome Measures (PROMs), and using the Problem Areas In Diabetes (PAID) scale during the Diabetes PatientâReported Outcome Measures (DiaPROM) pilot trial.
Methods
We performed a qualitative study among 19 young adults (aged 22â39 years) with type 1 diabetes who participated in the pilot trial. Between February and June 2019, we conducted individual, semiâstructured telephone interviews with participants from the intervention and control arms. We analysed the data using thematic analysis.
Results
Our analyses generated three themes, each with two subthemes: (1) Followâup with limitations; (i) Marginal dialogue about everyday challenges, (ii) Value of supportive relationships and continuity, indicate that previous followâup had been experienced as challenging and insufficient. (2) New insights and raised awareness; (i) More lifeâoriented insights, (ii) Moving out of the comfort zone, suggest mostly positive experiences with completing questionnaires and discussing the PAID scores. (3) Addressing problem areas with an open mind; (i) Need for elaboration, (ii) Preparedness for dialogue, indicate that both openness and explanations were vital in the followâup.
Conclusions
Participants characterised the previous followâup as challenging and insufficient. They described completing and using the PAID as somewhat uncomfortable yet worthwhile. Our findings also suggest that by utilising diabetes distress data alongside health and biomedical outcomes, consultations became more attuned to the young adults' wishes and needs, mainly because the dialogue was more focused and direct. Hence, the PAID has the potential to facilitate personâcentredness and improve patientâprovider relationships.publishedVersio